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Can't offer advice, as I have no experience, but I wish all of you well with these kids. That letter above made me go all goose-pimply.
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we have several Autistic / Aspergers children at our primary school. If I can help at all, just PM me.All gardeners know better than other gardeners." -- Chinese Proverb.Comment
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Hi TPeers, my sister has Landau Kleffner syndrome (comes under the Autistic Umbrella so to speak) I also work in a primary school, I have lots of info and experience in this area. If I can help then PM. Take care
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I haven't got the words....
You lot are just so fantastic!
Thank youThe weeks and the years are fine. It's the days I can't cope with!
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Having now got over my crying jag after all your help and comfort...
Thank you all so much for the unstinting help and support you have given and are offering to someone you hardly know.
You are an amazing group of people - I have no idea what I did to deserve such a wonderful group of friends.
I will slowly go though and reply to what has been written - and I admit I haven't logged on since Wednesday because I wasn't sure what I would find. I should have had more trust.
Thank you all
TerryThe weeks and the years are fine. It's the days I can't cope with!Comment
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I have to totally support your comments. You guys have kept me going through some rough times over the past couple of years with all your comments, posts, support and the rest. You are a special bunch of people! Bernie aka DDLOriginally posted by TPeers View Post
Bernie aka DDL
Appreciate the little things in life because one day you will realise they are the big thingsComment
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Last autumn I was one-to-one assistant to an Asperger's boy, who is v.bright but was on another planet really - in his own little world. He wouldn't do his work, he couldn't really write, he wouldn't listen or co-operate, he'd have regular tantrums and crying fits. It was emotionally draining for both of us. I couldn't do it full-time, so he got another helper and I didn't see him again until last week.
What a different boy - joining in with the other kids, maturing really well, more confident, a happier little boy all round. Thank goodness his parents got him Statemented so he got the help he needed. We have another little boy whose parents refuse to admit there's anything wrong with him, so he is really struggling (no parental consent = no statement = no extra help)All gardeners know better than other gardeners." -- Chinese Proverb.Comment
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Don't worry on that front TwoSheds - the parental consent is there - it's just getting the bleepin' LA to do an assesment that is going to be hard!
We have been advised that she will need almost one-to-one help, at least to start with, as well as flexibility in the timetable to let her have 'down time' when it all gets too much - so statements are the only way to go.The weeks and the years are fine. It's the days I can't cope with!Comment
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In our school, we recognise the children that need extra help, and they tend to get it even before a statement is issued. We have an excellent special needs network and SENCO.
I was talking about SN to someone else the other day, and we wondered if autism is actually on the increase, or if it is just more easily recognised now? When I were a lass, we had a "remedial" class (can you believe that term was actually used?) who were kept in a separate PortaKabin all the time; we only ever saw glimpses of the children.
We wondered whether mainstreaming is really the best way to go, as special needs children are incredibly good at disrupting the entire class, all the time (even when they have one-to-one).
We concluded that half-and-half is most effective (taking them out of the classroom when they 'kick off' and also to provide more tailored lessons. But then to bring them back into the main class as often as possible to socialise them. It's really tricky to get it right.Last edited by Two_Sheds; 12-05-2008, 07:48 AM.All gardeners know better than other gardeners." -- Chinese Proverb.Comment
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Could you make an appointment to speak to the SENCO (Special Needs Co-ordinator) at your daughter's school? They should be able to advise you as to what the school can do to support her, and if necessary, talk to you about the process for applying for a statement. Make a list of questions you would like to have answered before you go - if the SENCO can't answer them all, they should be able to point you in the direction of someone who can.
JulieComment
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Because she is currently at pre-school and goes to 'big' school in September it is apparently not that straightforward. The pre-school don't have a SENCO so I am trying to arrange a meeting with the Early Years Inclusion Officer. The SENCO at the 'big' school wants me to get the Statement before Pip goes there and can't offer her one-to-one without the funding a statement would give.....The weeks and the years are fine. It's the days I can't cope with!Comment
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We have had this thread before.
ASD is just that a sprectum....you go from "normal" at one end to "rain man" at the other.
I am trying not to be rude but this is the best way to explain it. You can't cure it but if you get a diag early enought you can work out coping mecanisms for the child......
But and this is a big BUT....it is dificult to diag correctly in young child. Sam was 8 before we got a diag and even then it was a bit hit and miss.
One thing.....YOU must attempt to get the statement..DO NOT LET the school try for it.
Satatemeting means the LA have to pay...they don't want to....If the school applys and fails to get the statement it is game over......If you apply you can appeal.
If you are sure it is ASD pust for a statement do not accept ACTION or ACTION Plus.
On the good side there are worse things in life.My phone has more Processing power than the Computers NASA used to fake the Moon LandingsComment
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I beg to differ, Nog. Along the continuum of ADS, "normal" is in the middle. Severely Autistic is at one end and Severely Aspergers is at the other.Originally posted by NOG View PostSent from my pc cos I don't have an i-phone.Comment
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Hi TPeers,Originally posted by TPeers View Post
Not only am i a Special Needs Nursery Nurse, but mum to charlie who has High Functioning Autism.
Does Pip have an IEP - the reason being is that people talk about "statements" but they are not that easy to get! THere is a whole section on ASD within the SENCO's toolkit, because it is so hard to guage. There needs to have been at least 2 IEP's to be in place and your child needs to be seen as failing these targets and therefore warranting 1:1 support, before they may even look at assessment stage. Statements are not as easy to receive as people think and it could be a long and hard battle. Has Pip seen an Ed Physc, because they would need to also be involved and report for the assessment as well as the peadiatrician.
My son doesnt have a statement and they have said that as the school seems to be coping (their words not mine!! - another story!!) that he would not receive one! At present Pip should be Early Years Action Plus (this is only because outside agencies are involved ie: a community paed) when she goes to school she will be on School Action Plus. Every school receives a budget from the LEA for Action Plus students - BUT and this is a huge BUT, they can spend this money as they see fit!! Every child should be able to receive some 1:1 report, so see what the new school does with its Action Plus money, there may already be a TA in each class to support children with additional needs.
One example of how hard it is to receive a statement is that I am working with a child who has Cerebal Palsy and she is only 4 and unable to weightbare or walk at all, but because she is NOT failing educationally then she does not warrant a statement, unless Pip is at the non-verbal end of the spectrum (lower functioning) then they may say that at present she is inline or even about her peers educationally and therefore would not warrant a statement.
If i can help in anyway please just ask, I know the route from both perspectives, work and home. I know what it is like to bash your head against a wall, but also a reward to be blessed with my special boy, oh and my other half is also Aspergers - I live in a mad world sometimes lol!
Any questions please ask and take care, i totally empathise with you and feel your grief at the moment, but my son has moved on greatly (he is now 7) and is hard work, but well worth it, i love him regardless.
SS xx
PS. For NOG - you have on the spectrum, High Functioning (like my son who is classed as HF/Aspergers and then it goes down to Low Functioning, which is for a lot less able children, but this is why there is a spectrum because every child is totally different and the range is huge.Comment
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Sorry if I have offended any one...it was not my intention....most people I talk to know nothing of ASD so I use the "Normal - Rain man" bit when I am trying to explain it to them. Most people think that all Autistics are at the Low Functioning end of the Specrum.
My boy is in there, but on a good day you wouldn't know....on a bad day...everyone knows. And a good day can go bad very easerly.
So we have to explain to mums, teachers, youth workers, family and friends the boundarys.My phone has more Processing power than the Computers NASA used to fake the Moon LandingsComment
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