ummmmmm

[Jax]

Hi feeling abit emotionally drained today. Just feels like theres a heavy load on my back. I dont normally wallow but Ifeel it may be in order, either that or some bugger has preordered it and here it is.

Anyhoo Jamie went for his big appointment in london on thursday and returned with bad news. He is going to need a bone marrow transplant. Not alot I can say really about it. Its pretty scary stuff. I was okay until I read up on it all to understand what he will be going through. Then it kind of hit me. Theres been loadsa other sh**ty stuff aswell but thats the biggy. There are more details in the link below on my signature. Anyhow I am sure Ill pick back up soon but I needed to share. Thanks for listening to my ramble.

[snuffer]

Ramble and rant as much as you like Jax. It is a sad fact that life can be s***ty some times and that we sometimes seem to get more than our fair share of crap. Hope all turns out well soon and that you are able to stay positive.

Sorry if what I write seems a bit trite. I'm not very good at putting into words what I'd like to say. Please be assured that people are thinking of you and yours.

Take care.

[Jax]

I know what you mean. Thankyou Im feeling abit more positive I think it just hit me and hubbys not been well etc etc etc

[FROSTYFRECKLE]

I've just been reading your story and what a brave wee boy you have (you are pretty special too, I don't know how you can keep on going). Sometimes you get news that takes your beathe away and your knees buckle, you are allowed to wallow. I keep on re-writing my post and I still cannot express what I mean so I'll end with a simple take care.

[OllieMartin]

Sounds like a pooey deal.

Just remember that it's the rubbish times that make the good times feel so much better.
Although nothing feels quite as good as a nice big HUG x

[Jax]

thanks, its his parents that are special. They are amazing. They have so much to contend with and they just keep going. I have my own stuff that I have to be strong for that I dont openly discuss. We all have our crosses to bear but sometimes you just feel like screaming at whatever higher being there is and begging for a break. Your right it does make your knees gofrom under you and it hurts so much to see something happening to someone nad there is nothing you can do to make them feel better or take away what they are experiencing. Jamie is an amazing boy and he will get better. i kow that his 18th birthday will come around and Ill be there as a proud auntie embarrassing him with all the stories I can fathom. I just wish he could have an easier time of things. Perhaps if his transplant is successful he will be granted that. But why should he have to fight for a normalish life when so many are granted it so easily. Thanks for your messages

[dexterdoglancashire]

Just read Jamies story. So sorry to hear your news. He's obviously a little fighter. All our love and prayers.
Bernie and Dexter

[Scottishnewbie]

Jax, i just read Jamie's story and it made me cry - not something that happens often. What an amazing family and puts life so much into perspective.

My husband came home from work today all quiet and not in a good mood at all (job isnt what he'd hoped and he has a rubbish boss). Reading about Jamie just makes me want to shout at him and make him read it too so that he realised that, actually he is very lucky man.

I hope all goes well and this really is the first step of recovery for Jamie - hugs and wishes from us in Scotland

xx

[Jax]

aww thankyou, he is an inspirational little boy. As a family we have been finding faith in prayers. We arent particularly religious but we beleive thatthe mass prayers we have for Jamie have helped him get this far. Im sure your husband appreciates what he has but a crappy time at work can be horrid. All you can do is make the most of what you have. Thanks for the wonderful wishes

[Bren In Pots]

Didn't want to read and run without say something but can't really put into words so I'll just say I'm thinking of you and your family especially Jamie.

[grannymem]

Hi Jax,

I've just read your message and followed the link to Jamie's story.

I guess no-one can understand what you are all going through - it's so hard to have to watch a child being so ill - and so courageous.
My nephew's little boy, Sam, has had to undergo an enormnous amount of hospitalisation and treatments ( severely diabetic at 15 months and leukaemia at 27 months) but he has done well and now, at 8, manages really well despite on-going treatments, scares etc. Children are remarkably resilient and seem to cope far better than we do with transfusions, lines, and ops. Much harder for those around them to cope - putting brave faces on, remaining cheerful for the child and family when inside panic and fear rage.
Of course, I'm not comparing Sam with Jamie but just hope that sharing his story a little with you may be of some use...

I'm so glad that you have found some consolation through the prayers of others. I shall certainly add Jamie and his family to my prayers, however feeble my prayers are!

I also wanted to add how beautiful Jamie's brothers and sisters are - what a lovely family.

I so wish there was something I could say to help - all I can offer is to share some of your pain with you for a moment.

[Brengirl]

I too have just read Jamie's story so far. I am now just sitting looking at the screen waiting for inspiration as to what to add to the previous comments. There is nothing but to add that I will try hard to never ever complain about my lot.
On his 18th he will already have acheived more than the rest of us in lifetime.

[Hans Mum]

Didn't want to read and run without say something but can't really put into words so I'll just say I'm thinking of you and your family especially Jamie.

ditto xx

[Jax]

Hi Jax,

I've just read your message and followed the link to Jamie's story.

I guess no-one can understand what you are all going through - it's so hard to have to watch a child being so ill - and so courageous.
My nephew's little boy, Sam, has had to undergo an enormnous amount of hospitalisation and treatments ( severely diabetic at 15 months and leukaemia at 27 months) but he has done well and now, at 8, manages really well despite on-going treatments, scares etc. Children are remarkably resilient and seem to cope far better than we do with transfusions, lines, and ops. Much harder for those around them to cope - putting brave faces on, remaining cheerful for the child and family when inside panic and fear rage.
Of course, I'm not comparing Sam with Jamie but just hope that sharing his story a little with you may be of some use...

I'm so glad that you have found some consolation through the prayers of others. I shall certainly add Jamie and his family to my prayers, however feeble my prayers are!

I also wanted to add how beautiful Jamie's brothers and sisters are - what a lovely family.

I so wish there was something I could say to help - all I can offer is to share some of your pain with you for a moment.

Oh gosh that souds like an awful experience. I hope he is well, or at least getting that way. It is alot of use thankyou. I was saying to hubby yesterday that its amazing how well children cope hell be at his 84th transfusion next week and I couldnt cope. He replied well he doesnt know any different but I disagree the injections and tests etc I agree but being taken away from his family he does know.

His family are amazing he has 2 brothers and 2 sisters and they are the most amazing kids. Thankyou for your prayers. No prayer is ever feeble. Thanks again