hypermobility

[janeyo]

My littlest boy (almost 3) has just seen a physiotherapist and been told he has hypermobility. Double jointedness. This explains why he falls over a lot, walks on tippy toes a lot and still walks like he's just learning. He also has very bendy legs lol

I have just had to buy him some special shoes with more support round the ankles and they now do some really funky ones (not like the clumpy ones I remember children having from school), and we have loads of excersizes to do with him. He will be seen again in a year's time.

Does anyone have any experience of this to offer guidance? Thanks

[pigletwillie]

Sarzwiz is the lad for info

[ailsasyl]

Have just answered you on facebook. HB has it mostly in her hands, suspect she has it in ankles knees too but that her tap dancing that she did when younger helped strengthen her joints. I also have it but didn't know till a few years back when I had problems with my ankle which was eventually operated on.
As well as the obvious hand eye co-ordination can be a problem, both HB and I are rubbish at sports as a result. It does improve as you get older!
The hand eye co-ordination not the hypermobility
This link is useful
The Hypermobility Syndrome Association - Home

As piglet says Sarz knows about this too!

[HeyWayne]

Sarzwiz is the lad for info

I'm sure she used to have a link in her sig...

[SarzWix]

If your little boy is hypermobile so are you or your hubby - it's hereditary It would explain a lot of your issues too.
The Hypermobility Association that ailsasyl linked to is the primary source of information on the net (to my knowledge, and I looked a lot when I was diagnosed). You can also get a fantastic book from Amazon. It costs over £30, but it explains soooo much, it really is worth it.

[ailsasyl]

If your little boy is hypermobile so are you or your hubby - it's hereditary

No one else in our family has it but mum has fibromyalgia which they now say may also be linked.

[Rhona]

I've got Ehlers-Danlos with hypermobile joints. I trained as a ballet dancer and it actually helped then, but I pay the price a bit now. Being diagnosed early is brilliant - I'm sure I would have benefited from being diagnosed earlier, and I certainly would have taken much more care of myself! He'll 'grow into himself' and be fine I'm sure, good luck.

Ask anything btw, by PM if you like x

[janeyo]

Thanks that's really helpful

I had clicky hips as a baby and had to wear double nappies to keep my hips at a certain angle, then walked on tippytoes til I was over 4 and the docs continually told my mum there was nothing wrong with me! NOw I have trouble standing on one leg and fall over lol. Even when sober

So yes, I guess he would get it from me

[janeyo]

I've got Ehlers-Danlos with hypermobile joints. I trained as a ballet dancer and it actually helped then, but I pay the price a bit now. Being diagnosed early is brilliant - I'm sure I would have benefited from being diagnosed earlier, and I certainly would have taken much more care of myself! He'll 'grow into himself' and be fine I'm sure, good luck.

Ask anything btw, by PM if you like x

Thanks Rhona... I also did ballet for 6 years. Maybe I should enroll the little one, am sure he'd be in big demand by the girls lol

[Rhona]

If your little boy is hypermobile so are you or your hubby - it's hereditary .

Yup, I think our little girl has it... too young to know for sure yet, but I can detect some signs. Not so (yet) with baby boy though. Fingers crossed (and then wrapped around each other again if you're REALLY bendy )

[janeyo]

If your little boy is hypermobile so are you or your hubby - it's hereditary It would explain a lot of your issues too.
The Hypermobility Association that ailsasyl linked to is the primary source of information on the net (to my knowledge, and I looked a lot when I was diagnosed). You can also get a fantastic book from Amazon. It costs over £30, but it explains soooo much, it really is worth it.

Can I have the ISBN please

[SarzWix]

Hypermobility Syndrome: Diagnosis and Management for Physiotherapists: Amazon.co.uk: Grahame Keer, Rosemary Keer, Rodney Grahame: Books

It says it's for Physiotherapists,but it has loads of information that is useful and relevant for patients/parents too.

ailsasyl - it is DEFINITELY hereditary, so your mum probably had/has it too - it's genetic. The trouble is that the hypermobile bit doesn't show as much when you get older, as the joints naturally tighten up somewhat. There is often issues of arthritis to contend with instead as the joints that were previously hypermobile show signs of excessive wear and tear.

Rhona - new studies show that Hypermobility Syndrome & Ehlers Danlos Hypermobility Type are likely to be the same thing, although other types of Ehlers Danlos can have more serious issues also (as I'm sure you know ). One of the main cross-over signs is resistance or immunity to local anaesthetics...

Apparently there is a 50% chance of your offspring inheriting the gene, with girls being more prone than boys. It's also possible to have the gene and the hypermobile joints, but suffer very little in the way of symptoms. Again girls seem more likely to suffer symptoms,particularly when adolescence hits If both parents have the gene, then the children will all inherit it (like mine )

[Rhona]

Thanks Sarz. In my usual dynamic fashion, I've never really bothered to find out much about my EDS, and just happen upon information every now and then like this. I will if our lil' girl has it though.

I do have symptoms, and am prone to dislocation etc., but only really drove me to distraction when pregnant as everything became so loose I felt like Sellotaping myself together!

The consultant told me there's pretty much bob all that can be done, so I left it at that and try not think about it too much. But I'm curious now ...whatever renders local anaesthetic pointless...would it also do the same to morphine?! I was given 3 maximum doses a few weeks ago (my first time), and didn't give much relief at all! Probably totally different thing though?

Bet you're feeling better all the time, eh Janeyo?!

[SarzWix]

It takes 2 full shots of morphine to have any effect on me Rhona, and it took 3 to get me into the MRI machine when my back was at it's worst. I also have to get to the point of passing out, with tingly lips before gas&air has any effect at all... So yes, it does seem to be part of it. They think it's something to do with the way the pain message travels to the brain, which is different, or stronger. The research is still a bit sketchy! That book that I linked to had lots of this info in it. Also some of the research which links HMS to a higher incidence of 'phobic states' is mentioned in there.

[Rhona]

Thanks again Sarz. That's interesting stuff. I had stumbled upon the link before (I think you might have mentioned it now I think about it) to phobic/mental things, but happily I've never had anything like that. You've piqued my curiosity about the physical effects though so i might do a bit more reading on it.

I've got a high pain threshold so I felt a bit wimpish at the time saying the morphine wasn't working, but I feel all vindicated now!

It's a complex thing, isn't it?